My mission is to reach as many people with my story to inspire, educate, and motivate. The more people who know the struggles and issues of survivors of being born with a congenital heart defect (CHD) the better our futures will be. Also to promote our mission is to guarantee the future will be brighter for those to come. 1% of babies born will have some type of CHD. That’s 1 out 100! I know it’s simple math but when you read it and say it, WOW! Those statistics almost guarantee that you or someone you know is affected directly or indirectly by CHD. The most important thing, in my opinion is that it be viewed as what it is, a defect. It’s not a disease, it can not be cured and it does not go away. This simple fact is what makes those with CHD so challenging at times.
It’s not all gloom and doom mind you. There are and have been advancements everyday in the treatment of CHD. My goal is to continue to push the advancement of proactive patients and families to seek the best possible care. Also, my personal belief is that not one person should lack proper treatment due to financial constraints. There are treatment centers and doctors out there that specialize in Adults with CHD. This may seem like a prehistoric statement but there are people out there that still see a regular cardiologist or no cardiologist at all since they became 18. The proper information has to reach them, it’s very important.
My wife and I have rented our house out and bought an old RV to travel the county. We will be raising money and spreading the word. This blog will be dedicated to telling my story and the story of others. My health is poor but my spirits are high along with my hopes. Please don’t hesitate to reach out to me, just to say hello, introduce yourself and tell me how CHD has affected you.